Association Volunteers are volunteers who perform a vital role in supporting people affected by motor neurone disease and those close to them.
AVs are based in the local community and can make contact with you in a variety of ways; by phone, email or visiting you in your own home.
Following a diagnosis of MND, it can be difficult to know where to turn. An AV can give you the opportunity to talk about your feelings and concerns in confidence and they can let you know what help is available in your area. This can help to reduce the sense of isolation some people affected by the disease can experience.
All AVs are carefully selected and undergo a thorough training programme and an enhanced Disclosure and Barring Service check (previously Criminal Record Bureau check). Throughout their time as volunteers, AVs receive continued learning and development. They also receive support from a regional care development advisor (RCSA), a member of the MND Association staff, who has qualifications or relevant experience in the health and social care field.
- Offer free and confidential emotional support.
- Offer practical suggestions and accurate information suited to the individual's needs.
- Provide information about the disease.
- Advise on how the MND Association can help.
- Follow up support requests and referrals made to the health and social care services and care agencies.
- Respects the individual's choices and wishes.
- Provide information about other sources of support.
- Helps the individual and carer identify problems as they arise and discuss how they might be managed.
- Always ask permission when contacting anyone involved in their care.
- Ensure confidentiality in all conversations (unless there is a perceived risk of harm to any individual).
Volunteers are needed throughout Northern Ireland.
Days and time spent will be arranged between the volunteer and the individual.